Reading these articles from The Washington Post and The New York Times, you would think that the most difficult thing about having
Postural Orthostatic Tachycardia Syndrome, or POTS, is finding a diagnosis. Once
that happens, these articles imply, everything is uphill, on a path to full
recovery. The problem with this narrative trajectory, of course, is that
POTS is a chronic illness, and the most difficult part of having POTS is having
POTS - that is, living day to day with the symptoms. By profiling one boy
whose story has an atypically rapid happy ending (Patrick Fox from the
Times article) and one boy whose story is crafted to fit the happy ending
narrative (as is the case for Adam Hammerman), these articles seem
uncomfortable with the fact that chronic illnesses are, well, chronic. They
might, as the Times article claims to do through Fox, raise awareness about
POTS, but they're also perpetuating the expectation put on people with chronic
illness to just get better, already. Especially egregious in this respect
is the Times article, quoting a Mayo doctor saying, "You have to make your mind rule
your body." If only it were as simple as that.
I chose
these articles because I'm interested in the representations of people with
disabilities in the media. The stories follow common trends in journalism
on illness: either writing about a model case featuring a full recovery (sometimes
accompanied by a triumphant "went on to play at Carnegie Hall" or
"is now the captain of her high school soccer team"), which enforces
the "overcoming your disability" idiocy, or slapping a happy ending
onto something that is actually much more ambiguous because people are uncomfortable
with that ambiguity.
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